Some days Ellie has some melt downs, she is very insecure in her attachment to me some days and doesn't want me to leave her side. She also gets frustrated easily because communication is difficult. So add that to her disabilities and her age, and some hours are fitful. However, they are so much less than a few months ago. She is really thriving. She is strong and determined and so very smart. She is slowly sleeping better at night. I might get one or two nights a week now where she doesn't wake up at all.
Isaiah is talking more and more. He has lots of energy and using less oxygen.He has even begun to trot a little bit. He will be having his 3rd catheterization next month, February 12th. He is not sleeping so great. Interestingly, after his open heart surgery in October he has slept worse, not from heart issues but from what appears to be sleep apnea. He tosses and turns at night, snoring half the night through and obviously gasping for air because his airway is blocked. Some nights I don't sleep well listening and worrying about him. Then there are some nights he sleeps better. We have an ENT appointment and Sleep appointment in the schedule as well for him.
I just wanted to share these precious photos of the two of them, that my budding photographer (Moriah) took a week ago. I was so excited to see the joy and love in both of their eyes and smiles. They love each other so much, most of the time.
Thanks for the updates and beautiful photos of some precious 3-year-olds!
ReplyDeleteLove and prayers, Emily Albertson