But the last few weeks we have been going to an average of 2-3 appointments a weeks, not including the needs of our other children. I feel, as of late, I am living in the car. Many of these specialists are about a 30 minute drive as well.
So far besides his regular doctor he has been to twice and the lab for blood work, twice, he has seen or will be seeing:
The cleft surgeon, ENT, audiologist, 2 speech pathologists, ophthalmologist, pediatric dentist, orthodontist, Occupational therapist, and nutritionist....
The good news is that so far everything is doing as well as can be expected. He will be receiving in-home speech and possibly OT weekly. He will also see another speech therapist, who is part of the cleft-team, a couple times a month. He will be getting a rotten tooth capped during his palate surgery, which is likely to be in April. He will be getting tubes in his ears during that surgery as well. Today we had an audio-gram done and it seems he has an ear infection and some hearing loss. She believes it is not permanent, although we won't be able to tell for sure until the fluid is drained post-operative.
The cleft doctor thinks he can repair in one surgery, but it is hard to tell for sure until he is healed from it. However, he will be going back in a few months following palate surgery to repair his nose and redo his lip. That surgery, while just an outpatient one, I am looking forward to the least, since I have first hand experience what sinus surgery recovery is like. Those stints are no fun!
The other day Asher got his eyes dilated and examined. It seems his eyes don't track together but the doctor didn't see that and thinks he looks great. Unfortunately, Asher hated the drops for his eyes. I think they made his sensory system out of whack, more than usual. He fussed a lot, was sort of goofy and very clumsy. So clumsy that he smashed his face soon after coming home, hitting our wall vent and really gave his eyelid a nasty cut.
Poor guy, is such a trooper.
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